Tips for getting quality information online
Evaluating health information
Previous generations were cautioned “don’t believe everything you read in the newspaper.” The Baby Boomer generation was taught “don’t believe everything you see on television.” The latest generation is learning “don’t believe everything you see on the internet.” Does that mean one should never search the internet for health information? No. But use caution and a healthy dose of skepticism. Below are some resources that may help.
Evaluating Internet Health Information: A Tutorial from the National Library of Medicine takes about 15 minutes and uses 2 fictitious websites to illustrate the importance of knowing the provider and purpose, information quality, and privacy protections of health topic websites. The tutorial has both slides and narration, and has user controls. This is a very basic tutorial, a good starting point.
A User’s Guide to Finding and Evaluating Health Information on the Web from the Medical Library Association. Millions of Americans search for health information on the web every year. Whether the health information is needed for personal reasons or for a loved one, millions of health-related web pages are viewed by millions of consumers. Sometimes the information found is just what was needed. Other searches end in frustration or retrieval of inaccurate, even dangerous, information.
This guide has much more depth about evaluating health web sites. It also includes a section titled “What did My Doctor Say?“
The special words doctors and nurses use can be hard to understand. You may see or hear these words at your doctor’s office, on the Internet, on the radio or TV, or in newspapers or magazines. We call these words “medspeak.” The Medical Library Association created this site to help you understand what a doctor or nurse tells you. You’ll find tips on how to understand many health words. This is offered in English, French and Spanish.
Reading research articles
What is an abstract?
An abstract of an article is a summary of the paper and appears after the list of authors. If there is an introduction, it describes the background leading up to the research, and often mentions other similar studies. If well written, the introduction will bring readers up to speed on the field and leave them with an understanding of why the authors decided to do the experiments they are presenting. [from the American Association for Cancer Research]
Understanding the Publication and Format of Cancer Research Studies [from Cancer.net]
“Publishing research studies is the primary way scientific professionals use to communicate their findings. They may publish original research or write a review article, which evaluates the existing body of published research on a particular topic. Well-designed research studies can help answer important questions about the biology of cancer, investigate new treatments, and identify areas for further study. Of course, the goal of research is to improve the care and treatment for patients with cancer.
Although the intended audiences for most cancer research studies are medical and scientific professionals, it is becoming more common for patients and their families to read studies while researching information about their cancer type and the treatment options. However, because research studies are written in a specific format and use scientific terms, it might be hard for a person to understand and interpret them. This article…is designed to help you better understand the publishing process, the format that journals and other scientific publications use to share findings, and how to find studies of interest to you….”
[For the complete article, click the link in the title.]
Understanding the Cancer Study Research Design and How to Evaluate Results [from Cancer.net]
“Researchers can design medical studies in different ways, depending on the question they want to answer and the best way to answer it. No study design is perfect; each has strengths and drawbacks. When evaluating the results of a study, it is important to know its design so that you know if the results apply to your situation.” [For the complete article, click the link in the title.]
National Institutes of Health Public Access Policy
The NIH Public Access Policy ensures that the public has access to the published results of NIH funded research. It requires scientists to submit final peer-reviewed journal manuscripts that arise from NIH funds to the digital archive PubMed Central upon acceptance for publication.Ã‚ To help advance science and improve human health, the Policy requires that these papers are accessible to the public on PubMed Central no later than 12 months after publication. PubMed Central (PMC) is the U.S. National Institutes of Health (NIH) free digital archive of biomedical and life sciences journal literature. When searching for articles on PubMed, try to be specific. Entering “inflammatory breast cancer” in the search box could include articles on standard breast cancer in the listing as well.
How can I get a copy of an article if free full text is not available?
If free full text is not available, copy the citation and check with the reference librarian at a local public or college library for assistance in obtaining a copy of the full article. If there is a medical school nearby, the librarian may be able to provide free public access for patients or caregivers.
Connect with nonprofits that offer information and services for the IBC community.
Explore helpful articles about IBC research, navigating cancer treatment, and more.